The gene therapy BBM-H901 (dalnacogene ponparvovec) has been approved in China for adults with moderate to severe hemophilia ...

Columnist Jennifer Lynne shares her takeaways from the NOW Conference, which brought together people with VWD and other bleeding disorders.

Columnist Joe MacDonald describes how his son and his family have a different meaning of 'normal' than most of the population.

Health Canada approved Altuviiio to treat hemophilia A in children, adolescents, and adults with the condition.

Columnist G Shellye Horowitz turns to fun hobbies while coping with chronic illness. Recent art purchases offer interesting ...

The bleeding disorders community reminds me of that massive oak tree.

Researchers said a better understanding of barriers to bone health in hemophilia and VWD is needed, and guidelines should be ...

The FDA has approved fitusiran, now Qfitlia, as a treatment for hemophilia A or B patients, ages 12 and older, with or ...

The cost of the one-time hemophilia B gene therapy Hemgenix (etranacogene dezaparvovec) will now be covered for eligible patients in Germany through the country’s public healthcare system. This comes ...

Having more choices about the treatment of hemophilia is empowering, but it also comes with challenges, columnist Jennifer Lynne writes.

My nurse friend remembered me as a mom whose focus was her son, not herself, and who carried a heavy weight of body and soul. Seeing her reconnected me with a significant piece of my past. Her ...